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服务

Our multidisciplinary team’s mission is to offer a comprehensive family-centered approach to assessment and care for children and families affected by serious illness, beginning in the prenatal stage of development into early adulthood. Our focus is on enhancing quality of life for our patients as well as their loved ones.

服务 Provided by 小儿姑息治疗

  • 支持 with medical decision-making by working together to identify each family’s unique goals of care
  • Expertise in pain and symptom management to improve quality of life
  • 支持 with communication among family members and medical teams
  • Emotional support and medical coping
  • Additional education about medical information and care
  • Coordination of care within the hospital and community
  • 高级护理计划
  • 临终关怀
  • 舒适护理

How 小儿姑息治疗 differs from Adult 姑息治疗

Many childhood medical conditions are rare and the length of each illness varies. Some children live for a short time, while most continue to receive pediatric palliative care for several months to years. 在大多数情况下, children receiving pediatric palliative care continue to receive care from their pediatrician and other medical providers.

Children may still receive cure-directed treatments while receiving pediatric palliative care. For children, medical decisions are typically made by or with family members. As children continue through development despite their illness, they can continue to receive multidisciplinary services to meet their developmental needs.

Candidates for 小儿姑息治疗

  • Infants and children with complex medical needs
  • Women and their families in need of additional support when a baby receives a diagnosis of a serious congenital condition during pregnancy, such as Trisomy 13 or Trisomy 18
  • Children who require frequent hospitalizations and high levels of care
  • Children impacted by medical trauma
  • Families needing support in preparing for end-of-life, including advanced care planning

Commonly Represented Medical Conditions 

  • Dravet综合症
  • 杜氏肌营养不良
  • 神经系统损伤
  • 成骨不全症
  • 高歇2型
  • 癫痫疾病
  • 瑞特综合征
  • 线粒体疾病
  • 脊髓性肌萎缩症
  • 泰(goldman Sachs)
  • 心脏病
  • 癌症
  • 未确诊的
  • 染色体的问题
  • Multiple congenital anomalies
  • Serious congenital heart disease
  • 严重的肾脏问题
  • Concerns during pregnancy increasing risk for severe premature delivery

保险

This is covered by your insurance company in the same way as any other specialist.